Need CT Lyme Specialist

General
,
1

I am at my wits end and exhausted. I tested positive for Lyme and have been on Doxycyline for 17 days, yet I feel worse each day. My PC told me to wait 5 more days to finish the Doxy.

I have been to my PC, neurologists, 3 orthopedics, physiatrists, etc....no one has been able to find out if my symptoms are related.to the lyme, yet I am getting worse instead of better. I have spent soooo much on copays, deductibles, testing etc.

I called a "Lyme" specialist doctor today in Wilton, CT to make an appt and the 1st consultation is $1,075.00 and each additional visit is $500!!! Does not take insurance. Needless to say, I feel so defeated, depressed etc. My summer has been wasted battling this disease since about April with no relief in sight.

Does anyone know a specialist in CT that 1. either takes insurance or 2. can sympathize with Lyme suffers rather than gouge them with outrageous office fees???

2

Yikes!!!LANespoli,you are going down a dark rabbit hole over there.

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/11429554-need-ct-lyme-specialist-doctor

3

Your PC gave you good advice. It takes time to recover, more treatment isn't better treatment.

BTW how were you tested?

4

Blood test. I'm almost done with the doxy and feel worse. The muscle twitching is making me crazy along w the exhaustion.

5


Dark rabbit hole meaning its hopeless?
Zach said:

Yikes!!!LANespoli,you are going down a dark rabbit hole over there.

http://www.mdjunction.com/forums/lyme-disease-support-forums/genera...

6

No,dark rabbit hole meaning,it will lead to a place called Lymeland.It's a very strange place.