I have pain everyday. It is more painful and more freQuent than pre-antibiotics(only been on for 5 weeks). Is that usual? I know herxing is supposed to be a good thing but what about the pain when you are not herxing?
I have pain every moment of everyday. I can a sure you that it is perfectly normal if you have lyme disease. I get herx reactions so bad I ended up in the hospital. My stomach starts to get tight and then it goes into my back and I can hardly breath. I vomit and pass out. Then other times my herx is just a really bad day and not being able to get around. Pain is to be expected with lyme. Where is your pain on the days you aren't herxing?
Angie
Hi Angie, omg I thought I was going crazy. I just started getting the same pain you described in this thread. That pain in the back n stomach n the inability to breath is beyond aweful I find there is very little that helps that but a good massage on my back and too many pain meds. I found that taking a break from treatment for a week does help out a lot. Have you any suggestions to decrease that pain when it comes along? I hope today is a good day for you.
Adge
DKEL
I just sent you an inbox message on how to comment on a thread , with these new changes… But I apparently got it now lol lol. So I’m a little computer illiterate lol.
Take good care and thanks for your constant support
Adge
I used to get my mom or dad to give me a hard back message and I would try ice. That would only work though for a short time and eventually didn't work at all. After I was in the hospital my doctor prescribed some really strong painkillers because Tylenol never worked. It's called tramadol. Now that I have that I take one as soon as a feel one coming. I never discovered a way to decrease the pain. After vomiting it got better for a little but then after a little it was back again. It would last for hours and in the middle of the night. The longest was 5 hours. I thought I was going to die. The pain is unbearable. It is a nasty thing to go through, but it just comes with the disease. Hope you can find a way to help you. You shouldn't have to just put up with it. Your doctor should be able to help with it. Your in my prayers.
Angie
Hi Hope,
When I take abx all the pain areas in my body light up like a Christmas tree. The pain is far worse than the days I am off medication. (My protocol is 4 days a week). I also sweat profusely, shake/twitch and experience body spasms. From what I understand, these reactions are indeed Herx...sorry you are feeling bad and I hope it gets better for you.
Hi dkel,
I have taken Tramadol for about seven years now. It is indeed far better than OTC meds. And you are correct about the opioid connection. Tramadol is not a narcotic, but it has been explained to me that it hits the same receptors in the brain that narcotic pain meds do. Over time, it does not work as well. I am going to a pain specialist in July. Have never been to one and do not know what to expect. Has anyone been to a pain specialist? What should I expect at the visit?
Hi dkel,
Thank you for the comprehensive reply. Yes, Tramadol does lose efficacy over time, but overall not too bad. After seven years I am on double the dose. So instead of 50-100 mg when I started I am now on 100-200 mg per dose. I agree with your friend on the (EM?) sight... it takes the edge off better than anything I have tried except for Celebrex.
I will definitely update after seeing the pain specialist. My appointment is not until July...long waiting list. My biggest anxiety is that he or she will perceive me as a "drug seeker"...I am willing to do acupuncture (again), biofeedback, or any other alternative means...Recently I did 3 months of physical therapy which was awesome...insurance denied any more. I know that pills do not fix but rather manage symptoms.
And hopefully the person I see does not have too many misconceptions about Lyme!!
It's a horrible feeling. I shake and jerk almost like I'm having a seizure. It seriously feels like your going to die. After five times I had enough and told my doctor I needed something for it. I used to get one every week and since I started taking Tremadol it just comes randomly. I don't go anywhere without those little white pill :)
Hi Angie,
I agree it feels like being on deaths door. Do you (or anyone) also get the sweats? I sweat all day and night even in the winter. My fingers are sliding off the keys as I type. Lyme doc is treating me for Babesia, which I think is the culprit.
Thank you dkel,
yes indeed my therapist gave me some of those bands. The best part is how flexible they are (and cheap). I got some exercise charts from him, but since they focus on the worst areas of pain I get frustrated! Most of the time I use resistance with my legs just to keep the blood flowing. Need to work to arms, my neck is so spastic that I rarely do upper body.
For anyone looking for something very easy to exercise with I also use the classis "thigh-master" you can use it just sitting in place and get a little workout on your legs. Its about $10 for a generic one.