I think its mre likley Just bart. I truly don't think its lyme. that bugger wasn't with you long enough. I do believe its some kind of septic arthritis. Ask away, please
I don't know how long it was with me. My back was seizing and I was on codeine, in bed. Got up to go to the washroom, saw a weird bite mark witha black thing...scratched it off (Didn't know about ticks and lyme) went back to bed and noticed the bite in the morning. They are so small, I could have missed it in the shower.??!!
Anyhow, Bart is tranferred by tick too so??? Wish I could send pics
Bart is mostly fleas. Dead, alive, decomposed, etc. The tick connection is suspected but not confirmed. Dr. Burgdorfer and his team dissect literally hundreds of thousands of Ticks an never found Bart.
An infected tick normally cannot begin transmitting the spirochete until it has been attached to its host about 36-48 hours; Generally, if you discover a deer tick attached to your skin that has not yet become engorged, it has not been there long enough to transmit the LD spirochete.
The rash will not show up for 7-14 days.
So you were having some of the arthritic (spondylitis) issues prior to the bite???
The back spasms had been delbilitating me for a couple of years. It was getting more and more often.. Was months and turned to weeks. Can't move when this happens. The pain is excruciting. Interestingly enough, I haven't had one of those since the night of the bite!
as I said, If it was a tick, which i am pretty sure it was, then I really don't know if it was engorged or not engorged.
The doctor (no. 2) said it was a tick bite when I showed him all the pics.
I had a complete mri cervical to lombard L2 was bulging. The rest was wear and tear. The neck was severe stenosis.
Happy new year
Hi, Foggy. Just reading your very interesting discussion and we wondering how your appt with the ID doc went?
. edited back because I misread date of initial post.
I know what you are going through,I deal with the headaches everyday and joint pain. I am very sorry you have got this terrible disease! I am here to support others to. You can message me anytime!
Hi there. There are many stories out there of people who have healed from lyme. They don’t follow one path. However, taking some risks is necessary to deal with a disease that mainstream medicine still claims does not exist.
This is the first time I have ever heard something negative about Probiotics tj11. (Other than that they don’t have any effect at all)
May I ask what branch of science you are in?
I got diagnosed 2 years ago, did 8 months of abx, then Cowden and many vitamins and some supplements. Since then I’ve found Qi Gong and other things have greatly improved my energy and reduced my time in bed.
I am an electronics guy, not a scientist. I like to debunk quackery but also realize just how early science is in the learning curve. (About most things).
I don’t mean to be critical, but I wonder sometimes whether you have suffered from this disease yourself.
Tommy
There are a numbe of studies such as this one: Antiviral activity of Bifidobacterium adolescentis SPM1605 against Coxsackievirus B3 - PMC
That have shown some probiotic treatments have killed Coxsackievirus. While that may sound like a GOOD thing, it isn’t necessarily so. Because Coxsackievirus is a single strand RNA type and is a native flora something everyone has, it is an important part of the immune system. It actually stimulates the immune system to work. If it is absent, then things can go seriously awry. If there is too much viral activity, then that of course is a problem.
The issue I was referring to was there have been some NDs that use the presence of this native virus to initiate some pretty severe Detox regimes and introduce probiotics to “replace” what they flush. Coxsackievirus lives in the mouth and throughout the digestive system.
Changing the native plasmids as these extreme treatments can have not a Beneficial Effect, but can cause some really bad things to happen that put folks on a rollercoaster ride of more and more expensive (non insurance covered" treatment. There is a very big difference between PTLDS and active Lyme. PTLDS is clearly a “thing” There is not one iota of evidence that a chronic Lyme Infection exists. There is ton of verifiable evidence that a poorly treated or incompletely treated Lyme infection can long term or even permanently damage an immune system to the point of the effects we read about here daily. Killing a non infection won’t help restore that immune system and in the case of the detox/probiotic treatments that even the LLMDs eschew further damage it.
I’m retired.
Thanks for the quick response. I am one of the PTLS sufferers and I am grateful that there are some doctors who take it seriously.
I agree that one should not “clean out the gut” and then attempt to selectively repopulate it. We don’t know enough about how all the microbes that have evolved with us operate. I had my LLMD stop the abx after 8 months. That was over a year ago. But if one still suffers from serious symptoms after that, it is a crap shoot as to what to do next. Since the immune system’s efficacy is so closely connected to a healthy biome, what do you suggest as a next course?
For many of us, our best results have come from a good Rheumatolgist. They are the true specialists in auto-immune diseases. They are often called the “detectives of the medical world” Just about every symptom the PTLDS sufferers commonly report an be linked to an inflammatory response. Inflammation is not USUALLY except when acute related to a weak immune system but rather one that has been called to action and just won’t quit. This is where a Rhemny can really come into play. In the old days PTLDS was called Reactive Arthritis and generally resolved in months or sometimes years. We now know That seronegative arthritis is a whole new class of diseases and are treated very aggresivley.
Great news! especially for those of us playing with pro-biotics. The answer is so simple and so TASTY. Donuts!!! We all need to eat more donuts. I’m up for that one!!!:
(this is supposed to be funny)